Analysis of health data is essential to advance research and enlighten the decision-maker or the citizen. For many reasons, these are now underutilized. The obstacles are not technical, but rather organizational and cultural. Overcoming them requires to acknowledge our collective responsibility on a founding principle: health data financed by national solidarity constitute a national asset. These data must be put at the service of the common good in respect of the ethics and fundamental rights of citizens. Easy, unified, transparent and secured access is of the essence.
Exploitation of health data: the "Health Data Hub" launches its first call for projects
The "Health Data Hub", led by Jean-Marc Aubert - Director of Research, Studies, Evaluation and Statistics (DREES) - launches a call for projects to select the first innovative initiatives in data mining which are of public interest. The laureates will be able to benefit from an accompaniment during a year starting from the second half of 2019.
Announcement of the 10 laureates of the first Health Data Hub call for projects
Chosen by a jury composed of experts in health, research and artificial intelligence, 10 projects were selected to benefit from the specific support of the Health data Hub in terms of skills, technological support and technical and regulatory advice. These 10 winning projects were selected for their maturity, innovative data exploitation, public interest, potential benefits and contribution to the Hub's data catalogue.
Expansion of the National Health Data System (SNDS) and establishment of the Health Data Hub
On July 24, 2019, the law on the organization and transformation of the health system was adopted. It implements the measures presented by the President of the Republic in his speech of September 18, 2018 on the project "My Health 2022". With regard to health data, it provides for the expansion of the SNDS to include all health data associated with care for which health insurance reimbursement is granted. This will allow common rules of access and processing to be applied, thus boosting usage while respecting citizens' rights. It also creates the Health Data Hub, a structure which provides the data.
Data sharing platform allowing the collection of data sources needed to improve the quality of care.
TRANSPARENCY AND SECURITY
Individuals can not be directly re-identified from the shared data and the access is regulated: an ethical and scientific committee, as well as the CNIL, ensure a reasoned access to the data and the citizens are informed. The platform is highly secure.
MUTUALIZING TECHNOLOGY AND EXPERTISE
QUALITY OF DATA
The use of health data is essential to the development of a more personalized medicine, provided that the quality of the data and the relevance of the interpretations are guaranteed.
A clearly identified entry point is essential to better understand the nature and conditions of access to the health databases currently available for research.
Data analysis and provision of data under high security conditions is demanding and costly. The skills required to collect and value these data are sharp, rare and expensive. Let’s mutualize!
Known for its excellence in medicine and mathematics, France is an ideal candidate to become a leader in the health data ecosystem provided that it develops an environment in which innovations can flourish.
Health Data National System expert at the National Institute of Health Data
Health Data Expert in the Research, Studies, Evaluation and Statistics Directorate of the Ministry of Solidarity and Health