ATTENTION: Le site internet du Health Data Hub est en reconstruction. Le Health Data Hub est issu de la transformation de l'INDS et intégrera dans le futur les informations encore disponibles sur l'ancien site
Analysis of health data is essential to advance research and enlighten the decision-maker or the citizen. For many reasons, these are now underutilized. The obstacles are not technical, but rather organizational and cultural. Overcoming them requires to acknowledge our collective responsibility on a founding principle: health data financed by national solidarity constitute a national asset. These data must be put at the service of the common good in respect of the ethics and fundamental rights of citizens. Easy, unified, transparent and secured access is of the essence.
Data sharing platform allowing the collection of data sources needed to improve the quality of care.
Individuals can not be directly re-identified from the shared data and the access is regulated: an ethical and scientific committee, as well as the CNIL, ensure a reasoned access to the data and the citizens are informed. The platform is highly secure.
The use of health data is essential to the development of a more personalized medicine, provided that the quality of the data and the relevance of the interpretations are guaranteed.
TRANSPARENCY AND SECURITY
QUALITY OF DATA
MUTUALIZING TECHNOLOGY AND EXPERTISE
A clearly identified entry point is essential to better understand the nature and conditions of access to the health databases currently available for research.
Data analysis and provision of data under high security conditions is demanding and costly. The skills required to collect and value these data are sharp, rare and expensive. Let’s mutualize!
Known for its excellence in medicine and mathematics, France is an ideal candidate to become a leader in the health data ecosystem provided that it develops an environment in which innovations can flourish.
Project Manager at the Research, Studies, Evaluation and Statistics Directorate of the Ministry of Solidarity and Health